For us, without us

The UNCRPD mandates that persons with disabilities have the right to be recognised as persons before the law, and enjoy the same legal capacity as others in all aspects of life. Neither of these mandates is reflected in the bill. Though persons with disabilities are granted the right to own or inherit property, control their financial affairs and obtain access to bank loans, mortgages and other forms of financial credit, there is no effective manner of realising these rights and no provision for safeguards whatsoever.

In any case, these provisions only apply to persons who have legal capacity, and there are exclusions to this, perhaps unprecedented in Indian law. There is no shift from substituted decision-making to supported decision-making. The “mentally ill” who are unable to take care of themselves or make legally binding decisions will have all decisions taken on their behalf by guardians. The position of persons governed under the NTA does not change at all. And then, more categories of persons with disabilities may have their legal capacity threatened. The bill creates the category of persons with “high support needs”. Any person with more than 40 per cent of a disability and who needs “intensive support, physical, psychological and otherwise,… for activities of daily living; independent and informed decision-making; accessing facilities and participating in all areas of life including education; employment; family and community life; and treatment and therapy” is included in this category — effectively all persons with over 40 per cent disabilities. An assessment board gets to take decisions on the nature of “support” to be given to these persons, with no obligation to consult the person concerned. The scope of “support” is not defined under the bill, which means it could include guardianship or even institutionalisation, neither of which are barred.

Undoubtedly, the bill opens up various opportunities — there are incentives for the private sector to accommodate persons with disabilities, and with that will come requirements for training the persons who are employed, sensitising other staff members and making workplaces accessible. These measures are beneficial to many. However, is it worth shutting the door on discussions in order to — quoting the Centre for Advocacy in Mental Health — “secure maximum rights for maximum people with disabilities; and lay to rest the original inclusive concern about all rights for all persons with disabilities”? One could possibly argue that other concerns could be addressed in the form of amendments at a later stage — but these amendments would be fragmented discussions, running contrary to the cross-disability movement that the drafting of the bill and the UNCRPD have come to symbolise. Like charity, inclusion starts from home.

For a flailing government trying its best to play to the gallery, enacting a “social welfare” legislation like the Rights of Persons with Disabilities Bill is a marvellous opportunity. Something as serious as an all-encompassing legislation for all persons with all disabilities deserves more than to be reduced to a bullet point on an election poster.

The writer is an advocate, and fellow, Inclusive Planet Centre for Disability Law and Policy, Chennai 

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